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“The most outstanding characteristics of FASD are bad judgment & the inability to make the connection between an act & its consequences”


Dr. Ann Streissguth

Understanding FASD: A Brain-Based Difference

THE BASICS

Fetal  Alcohol Spectrum Disorders (FASD) are a group of conditions caused by prenatal alcohol exposure. FASD is a brain-based disability affecting development, learning, behavior, and daily functioning across the lifespan. 


Conservative estimates suggest FASD affects 1 in 20 people in the United States—that's 5% of the population, more prevalent than autism spectrum disorder. 


Despite its prevalence, FASD remains one of the most underdiagnosed and misunderstood disabilities. Most medical, mental health, and education professionals receive little to no training on FASD during their graduate programs. 

WHAT FASD LOOKS LIKE

FASD doesn't have one "look."  Most individuals with FASD have no distinctive physical features, leading to the dangerous assumption that they should be able to perform at their chronological age level.  


Brain differences in FASD can affect:

  • Executive function (planning, organization, impulse control)
  • Memory (especially working memory and learning from consequences)
  • Abstract thinking and understanding cause-and-effect
  • Processing speed and adaptive functioning
  • Emotional regulation and sensory processing
  • Social communication and reading social cues


  These are neurological differences, not behavior problems or willful defiance. 

THE CHALLENGE OF MISDIAGNOSIS

FASD is complex—symptoms overlap with many other conditions, and it's frequently misdiagnosed as :

  • ADHD
  • Oppositional Defiant Disorder (ODD)
  • Autism Spectrum Disorder
  • Conduct Disorder
  • Anxiety or mood disorders
  • Learning disabilities

WHY TRADITIONAL APPROACHES DON'T WORK

When FASD goes unrecognized, traditional interventions often fail because they don't address the underlying brain-based differences. Families spend years trying approaches that weren't designed for how their child's brain actually works. 

WHY UNDERSTANDING CHANGES EVERYTHING

For Families

When you understand your child has FASD, you stop blaming yourself. You stop using strategies that don't work. You start building on strengths, accommodating weaknesses, and creating an environment where your child can thrive.

For Professionals

Accurate identification leads to appropriate interventions. When you recognize FASD, you can adapt therapeutic approaches, recommend proper accommodations, and set realistic expectations that honor the individual's neurobiology.

For Individuals with FASD

Proper diagnosis provides access to services, legal protections, and self-understanding. It replaces shame with explanation and opens pathways to support.

COMMON SIGNS

While only qualified diagnosticians can diagnose FASD, these patterns may suggest the need for evaluation. Although no two people experience FASD the same way, a person living with FASD might have challenges in these areas: 

Cognitive & Learning Differences

Executive functioning challenges: Impulsivity, planning, starting and completing tasks, organization, adapting to changes, inhibitory control, and time management can be difficult


Memory differences: Strong rote memory but poor working memory; remembering instructions, routines, or new information can take extra effort


Processing information: Understanding, remembering, or learning new information may require more time or different approaches


Attention: Maintaining focus during school, work, or homework can be difficult for extended periods


Abstract reasoning: Understanding ideas that aren't concrete, such as love, fairness, or hypothetical situations, may be more difficult


Generalization: Applying skills or knowledge learned in one situation to a different situation may be challenging


Academic struggles: Difficulty with math, especially word problems and abstract concepts; significant gap between verbal ability and actual performance; difficulty in school due to challenges with learning, memory, or attention

Behavior & Adaptive Functioning

Impulsive decisions with poor judgment: Difficulty predicting outcomes of actions


Reasoning and judgment skills: Making safe choices or understanding consequences can be tough without extra guidance; repeats same mistakes despite consequences


Developmental maturity: Seems immature compared to same-age peers


Transitions and flexibility: Struggles with changes in routine; restlessness, frequent movement, or difficulty sitting still may occur


Daily living skills: Needs reminders for daily tasks despite years of practice; difficulty managing money or time; requires more supervision than expected for age


Skill inconsistency: Skills learned one day seem lost the next

Social & Emotional Differences

Emotional regulation: Feelings can be very strong and intense, seeming disproportionate to situations, and it may take effort to manage them


Social skills: Forming connections and interacting with others may be harder; easily influenced by others; difficulty reading social cues; understanding emotions or joining conversations can be challenging


Relationships: Friendships that don't last; social isolation


Communication: Speech and language challenges; developing speech or understanding and using language may take longer


Memory and communication: Confabulation (filling in memory gaps with fabricated details, not intentional lying)

Sensory & Physical Differences

Sensory processing: Sensory inputs such as sounds, lights, taste, smell, touch, and movement can sometimes feel overwhelming or uncomfortable


Motor skills: Poor coordination; balance or fine motor skills may be affected


Sleep and eating: Sleep challenges or feeding issues, especially in early childhood


Vision or hearing: Eyes or ears may need extra care or support from specialists


Medical concerns: Heart, kidney, or bone problems; physical differences in organ or bone development may also occur


If these patterns sound familiar, consider seeking FASD evaluation.  

GETTING A DIAGNOSIS

FASD diagnosis requires specialized assessment by trained clinicians familiar with the diagnostic criteria. In Illinois, diagnostic resources are limited.  


 We can help you:

  • Navigate the referral process
  • Prepare for diagnostic evaluation
  • Understand assessment results
  • Advocate for appropriate services

SCHEDULE A CONSULTATION

AFTER DIAGNOSIS: WHAT HELPS

The most important shift: Moving from behavior-based to brain-based thinking.


This means:

  • Accommodating rather than remediating neurological differences
  • Reducing environmental demands rather than expecting the individual to "try harder"
  • Building external supports for executive function weaknesses
  • Using concrete, visual, repetitive teaching strategies
  • Recognizing that inconsistency IS the consistency with FASD
  • Providing supervision and structure that matches developmental age, not chronological age


We provide the coaching, training and support to make this shift possible

RESOURCES

ILLINOIS DIAGNOSTIC RESOURCES

ILLINOIS DIAGNOSTIC RESOURCES

ILLINOIS DIAGNOSTIC RESOURCES

CHILDREN'S RESEARCH TRIANGLE (Chicago, IL )  Medical, Psychological, Developmental Evaluations + Clinical Services


FLORISSA CENTER  (Dixon, IL) Evaluation, Diagnosis,  & Treatment Services

 

FUSION CENTER NETWORK

(anywhere in US) Diagnostic evaluations for individuals with complex conditions through specialized expertise and innovative strategies. 

NATIONAL ORGANIZATIONS

ILLINOIS DIAGNOSTIC RESOURCES

ILLINOIS DIAGNOSTIC RESOURCES

FASD UNITED  Leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community


THE FLORIDA CENTER   Training Institute calendar to find FASD trainings for educators, caregivers, and parents. 


PROOF ALLIANCE  A comprehensive site dedicated to providing families and professionals with a vast amount of resources and information on FASD.


 FASD COLLABORATIVE  A cross-organization international initiative to increase high-quality support and training options for the FASD community.   


RECOMMENDED READING

ILLINOIS DIAGNOSTIC RESOURCES

RECOMMENDED READING

Trying Differently Rather Than Harder by Diane Malbin 


Raising Kids & Teens by Barb Clark

FREE ONLINE SCREENING

San Diego State University Center for Behavioral Teratology has developed a new web-based screening tool , BRAIN-Online, that assesses cognitive and behavioral features known to be associated with FASD 

Launch BRAIN-Online

READY FOR SUPPORT?

 Whether you're a parent just starting this journey or a professional seeking specialized training, we're here to help. 

EXPLORE OUR SERVICES


PREGNANCY & ALCOHOL

According to the Guttmacher Institute, over  50% of pregnancies in Illinois are unplanned. Drinking alcohol before realizing you are pregnant is common. The safest decision is to abstain from alcohol for the remainder of your pregnancy. If possible, get regular prenatal care and talk to your healthcare provider about any alcohol use during your pregnancy to discuss any concerns.  



AVOIDING ALCOHOL IS NOT EASY FOR EVERYONE.  

If you need support with alcohol during your pregnancy, learn about treatment options at SAMSHA  or NIAAA.

Learn More

FASD UNITED FAMILY NAVIGATOR

FASD United's Family Navigators serve members of the FASD community by providing expert one-on-one support and referrals for resources & services.  This services is free and available via phone or online support request.

FIND HELP NOW

 This site provides general educational information about Fetal Alcohol Spectrum Disorder (FASD) and related topics only and does not provide medical, psychological, legal, or educational advice, diagnosis, or treatment. It should not be used as a substitute for consultation with qualified professionals. See full Disclaimer


 If you think you may have a medical or psychiatric emergency, call 911 or go to the nearest emergency room immediately.   
 

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