RESOURCE LIBRARY
When we understand what's driving the behavior, we can identify appropriate accommodations and support. Focusing on positive, preventative strategies—rather than simply reacting to problems—leads to better outcomes for individuals, stronger relationships, and improved quality of life.
Despite affecting up to 1 in 20 people, FASD remains unfamiliar to many professionals, leaving families struggling to access essential services. The resources and organizations below offer FASD-specific and trauma-informed support
FASD UNITED FAMILY NAVIGATOR
FASD United's Family Navigators serve members of the FASD community by providing expert one-on-one support and referrals for resources & services. This services is free and available via phone or online support request.
LOCAL FASD ORGANiZATIONS
FASD/BRAIN-BASED INFORMED PROFESSIONALS
FASD/BRAIN-BASED INFORMED PROFESSIONALS
EVALUATION & DIAGNOSIS SERVICES
CHILDREN'S RESEARCH TRIANGLE (Chicago, IL ) Medical, Psychological, Developmental Evaluations + Clinical Services
FLORISSA CENTER (Dixon, IL) Evaluation, Diagnosis, & Treatment Services
(anywhere in US) Diagnostic evaluations for individuals with complex conditions through specialized
EVALUATION & DIAGNOSIS SERVICES
CHILDREN'S RESEARCH TRIANGLE (Chicago, IL ) Medical, Psychological, Developmental Evaluations + Clinical Services
FLORISSA CENTER (Dixon, IL) Evaluation, Diagnosis, & Treatment Services
(anywhere in US) Diagnostic evaluations for individuals with complex conditions through specialized expertise and innovative strategies.
MEDICAL & PSYCHIATRIC SERVICES
Dr. TOOD OCHS (Chicago, IL) Physician specializing in FASD
AARTS Resource Directory Rush's online resource guide to help families with children with neurodevelopmental disabilities find wide range service and support referrals in the following counties: Lake, McHenry, Kane, DuPage, Cook, Kendall, Will, Grundy and Kankakee.
COMMUNITY
FASDCAMP (Chicago, IL) CAMP provides children with FASD a positive and safe environment in which to build skills that will assist them in everyday life
IL DEPT of HEALTHCARE & FAMILY SERVICES
The Family Support Program (FSP) provides access to intensive mental health services and supports to youth with a severe emotional disturbance.
HOME & COMMUNITY BASED SERVICES
A waiver is a program that provides services that allow individuals to remain in their own homes or live in a community setting, instead of in an institution.
FASD/BRAIN-BASED INFORMED PROFESSIONALS
FASD/BRAIN-BASED INFORMED PROFESSIONALS
FASD/BRAIN-BASED INFORMED PROFESSIONALS
Diagnostic evaluations for individuals with complex conditions through specialized expertise and innovative strategies.
FASDOGS Service Dog Organization
FASCETS Consultation, Education +Training Services
BARB CLARK Behavior/FASD Consultant
PATRICIA KASPER TRAINING SERVICES FASCETS Neurobehavioral Model Training & Trau
Diagnostic evaluations for individuals with complex conditions through specialized expertise and innovative strategies.
FASDOGS Service Dog Organization
FASCETS Consultation, Education +Training Services
BARB CLARK Behavior/FASD Consultant
PATRICIA KASPER TRAINING SERVICES FASCETS Neurobehavioral Model Training & Trauma Related Services
EILEEN DEVINE Neurobehavioral Support Coach for Parents
OREGON BEHAVIOR CONSULTATION & COGNITIVE SUPPORTS With NATE SHEETS Behavioral Consultant
FAMILIES MOVING FORWARD A treatment intervention for the families of children with FASD
INFORMATIONAL, TRAININGS, & WEBINARS
FASD/BRAIN-BASED INFORMED PROFESSIONALS
INFORMATIONAL, TRAININGS, & WEBINARS
FASD COLLABORATIVE A cross-organization international initiative to increase high-quality support and training options for the FASD community.
FASD UNITED Leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community
THE FLORIDA CENTER Training Institute calendar to find FASD trainings for educators, caregivers,
FASD COLLABORATIVE A cross-organization international initiative to increase high-quality support and training options for the FASD community.
FASD UNITED Leading voice and resource of the Fetal Alcohol Spectrum Disorders (FASD) community
THE FLORIDA CENTER Training Institute calendar to find FASD trainings for educators, caregivers, and parents.
PROOF ALLIANCE A comprehensive site dedicated to providing families and professionals with a vast amount of resources and information on FASD.
UNIVERSITY OF ROCHESTER Includes caregiver guides, family support groups, educational materials, and professional training links.
Canada's source for evidence-based information on Fetal Alcohol Spectrum Disorder (FASD)
NTIUPSTREAM Resources that focus on the healthy development of children and their families
COLLABORATIVE INITIATIVE on FASD Coordinates Multidisciplinary research projects with the goal of developing effective interventions and treatment for FASD
UNDERSTANDING FASD National Center on Substance Abuse and Child Welfare
ADVOCACY & INFORMATIONAL RESOURCES
ADVOCACY & INFORMATIONAL RESOURCES
INFORMATIONAL, TRAININGS, & WEBINARS
RED SHOES ROCK Building FASD Awareness Through Grassroots Efforts
9 CORE MESSAGES Alaska Mental Health Trust Authority
DAVID BOULDING Consultant, Fetal Alcohol & The Law
FASD and INAPPROPRIATE SEXUAL BEHAVIOR
FASD: Neurodevelopmentally and Behaviorally Indistinguishable from Other Neurodevelopmental Disorder
RED SHOES ROCK Building FASD Awareness Through Grassroots Efforts
9 CORE MESSAGES Alaska Mental Health Trust Authority
DAVID BOULDING Consultant, Fetal Alcohol & The Law
FASD and INAPPROPRIATE SEXUAL BEHAVIOR
STIGMA, DISCRIMINATION, & FASD
STRENGTH AMOUNT INDIVIDUALS WITH FASD
EDUCATION ADVOCACY TOOLS via Proof Alliance's (NOFAS Affiliate)
MEDICAL & EDUCATION Resources
ADVOCACY & INFORMATIONAL RESOURCES
MEDICAL & EDUCATION Resources
FETAL ALCOHOL SPECTRUM DISORDER & COMPLEX TRAUMA
CURRENT STRATEGIES & EDUCATIONAL SUPPORTS FOR STUDENTS WITH FASD
FASD EDUCATIONAL STRATEGIES HANDBOOK via University of South Dakota
UNDERSTANDING FETAL ALCOHOL SPECTRUM DISORDER: Comprehensive Guide for Prek-8th Grade via Duke University
ALTERNATIVES TO RESTRAINT & SECLUSION via Alliance Against Seclusion and Restraint
CANFASD MENTAL HEALTH RESOURCE & PRACTICE GUIDE
FASD TOOLKIT FOR PEDIATRIC PRIMARY CARE CLINICIANS
MEDICATION ALGORITHM CanFASD's medication algorithm is a treatment recommendation for psychotropic medications for FASD/ND-PAE.
FACT SHEETS & Handouts
ADVOCACY & INFORMATIONAL RESOURCES
MEDICAL & EDUCATION Resources
Available Fact Sheets:
For Everyone
For Someone Who Just Received an FASD Diagnosis
For the Justice System
For Educators
For Employers
For the Child Welfare System
For Police Officers
For Transition Age Youth
For Individuals with Substance Use Challenges
The FASD National Agenda
The FASD United Affiliate Network
State Data
Available Fact Sheets:
For Everyone
For Someone Who Just Received an FASD Diagnosis
For the Justice System
For Educators
For Employers
For the Child Welfare System
For Police Officers
For Transition Age Youth
For Individuals with Substance Use Challenges
The FASD National Agenda
The FASD United Affiliate Network
State Data Sheets
AMERICAN ACADEMY OF PEDIATRICS FACT SHEETS
Available Fact Sheets:
The ABCs of FASD
The Basics of FASDs: Information for Families
Diagnosing FASDs: What Families Need to Know
ADHD or Fetal Alcohol Spectrum Disorders?
FASD Virtual Learning Collaborative Resource Toolkit
Downloads
Neurodevelopmental FAQs (pdf)
DownloadMyth-Busting FAQs (pdf)
DownloadSelf-Care for Caregivers (pdf)
DownloadCaregiver Strategies (pdf)
DownloadSupporting Interdependence (Caregivers) (pdf)
DownloadBuilding Interdependence (Adolescents/Adults) (pdf)
DownloadCircle of Support (Adolescents/Adults) (pdf)
DownloadEducators: Understanding FASD & Trauma (pdf)
DownloadCaregivers: Understanding FASD & Trauma (pdf)
DownloadEight Magic Keys for Developing Successful Interventions for Students with FASD
Understanding how students with Fetal Alcohol Spectrum Disorders learn, and 8 tools for developing strategies best to support their learning needs.
FASD Awareness
View the short film commissioned by UK's FASD Awareness to learn more about the potential effects to an unborn baby when prenatally exposed to alcohol. The film explores how alcohol affects the developing fetus, brain development, gene expression, affects cell migration, and can inhibit growth.
This site is intended to provide information on Fetal Alcohol Spectrum Disorder. The content found on the website is not intended to recommend, replace, or serve as a substitute for professional medical, psychological, legal, or educational advice, recommendations, diagnosis, treatment, medication, therapies, or counsel. References and resources to specific organizations do not constitute endorsement by this site.
As a reminder, medical or mental health concerns should be discussed with a licensed professional. If you or someone with you is in immediate danger, please contact 911.